I was told I couldnât have an Afro wig after chemo
From the age of seven Anastasia Cameron was turned away from hairdressers because she was told they âdonât do Afro hairâ.
When she needed a wig after chemotherapy as an adult, little had changed, said the 39-year-old, who was diagnosed with breast cancer in 2021.
âIt was awful, they basically said that I couldnât have Afro hair,â she said. âYouâre in a traumatic position after the diagnosis and dealing with the physical changes â but I was back to being isolated and had to manage the situation myself.â
The experience took her back to childhood when she was sent away from salons or mocked by her peers after cuts by inexperienced stylists.
âI just felt there was something wrong with me at that point,â she said.
âThe stigma that I faced over a long period â it does traumatise you.â
A range of appropriately textured wigs were not available when Ms Cameron needed them after cancer treatment.
But changes to the NHS Wales contract now mean wig suppliers must offer a wider range for different ethnic communities.
This prompted Ms Cameron, a hairdresser and wig maker from Rhoose, Vale of Glamorgan, to bid for one of the NHS Wales contracts herself, meaning she now ensures cancer patients have the choice she did not.
She said there was still a huge skills gap among hairdressers who are not trained to cut her type of curl or Afro-textured hair.
âI recently went to have my first haircut after chemotherapy and had to talk the person through it because they didnât know how to. Iâve got the experience to be able to do that, but I shouldnât have to.â
That gap in appropriate aftercare is a familiar theme to Denise Mayhew, an ambassador for cancer charity Black Women Rising.
But disparities are also seen within healthcare itself. Her own treatment was outstanding, she said, but that is not the norm.
âWe may all be one human race, but weâre definitely not treated the same,â said the 42-year-old who was diagnosed blood cancer multiple myeloma in 2018.
âYou have people walking into their medical team saying âplease treat me like a white woman so I can liveâ. Thatâs heartbreaking.â
She explained âmyths and taboosâ often caused barriers to diagnosis, including women being stereotyped as âblack and strongâ, meaning their pain is dismissed.
Cultural attitudes and religious beliefs within communities might make people hesitant about chemotherapy, though work is being done to âtry and change the narrativeâ.
Breast cancer surgeon Zoe Barber acknowledged there was âa very rightful fear of being dismissed by a doctorâ.
She said women from those groups were generally diagnosed at a later date as a result, leading to more invasive treatment and worse prognoses.
Ms Barber added support after treatment had not always been adequate.
A prosthetic offered after mastectomy âuntil very recently came in either a white colour or a pale peach colour. And if youâre a woman who isnât fair skinned, then that is so âotheringâ for youâ.
âWe as clinicians should be advocating for those women as well. I think itâs still really important we recognise that we are still letting those women down and thereâs far more work to be done.â
Judi Rhys from Tenovus Cancer Care said a lack of data on patient ethnicity remained a âsignificant barrier to equitable healthcareâ.
âWe have called for the collection of patient ethnicity data since our research revealed it is not routinely gathered, despite a mandate to do so,â she said.
âWe understand activity is on the horizon, but progress is far too slow.
âNot only could this data inform tailored treatment pathways, but it could also highlight underrepresented groups in research and clinical trials, disparities in screening uptake, and the need for essential services like hair replacement during treatment.â
The Welsh government said it took health inequality âvery seriouslyâ and a ânumber of improvements to data collection and analysisâ had been implemented.
It added it would continue to work with NHS Wales to âdetermine how we can further capture data on ethnicityâ so data is available when people are accessing healthcare.